For FREE help finding a Medicare plan,
Click here or call 1-800-729-9590.
Activist and ALS advocate Ady Barkan has lost the ability to speak audibly — but his call for Medicare for All brought this hearing to a standstill.
» Subscribe to NowThis:
Ady Barkan: 'Never before have I given a speech without my natural voice. Never before have I had to rely on a synthetic voice to lay out my arguments, convey my most passionately held beliefs, tell the details of my personal story. Three years ago, Rachel and I felt like we had reached the mountaintop. We had fulfilling careers, a wonderful community of friends and family, and a smiling, chubby infant boy. We could see decades of happiness stretching out before us. The sun was shining and there was not a cloud in sight. And then, out of the clear, blue sky, we were struck by lightning: ALS, a mysterious neurological disease with no cure and no good treatment, a life expectancy of 3 to 4 years. Most of its victims are in their 50s and 60s. I was 32. Every month since my diagnosis, my motor neurons have died out, my muscles have disintegrated, and I have become increasingly paralyzed. I am speaking to you through this computer because my diaphragm and tongue are simply not up to the task. Although my story is tragic, it is not unique. 10% of Americans have a serious disability. Every family is eventually confronted with serious illness or accidents. On the day we are born, and on the day we die, and on so many days in between, all of us need Medicare, and yet in this country, the wealthiest in the history of human civilization, we do not have an effective, or fair, or rational system for delivering that care. The ugly truth is this: health care is not treated as a human right in the United States of America. This fact is outrageous and it is far past time that we change it. Say it loud for the people in the back, health care is a human right. For my family, although we have comparatively good private health insurance, ALS now means paying out-of-pocket for almost 24-hour home care. This costs us $9,000 every month. The alternative is for me to go on Medicare and move into a nursing home away from my wife and my son. So we are cobbling together the money from friends, and family, and supporters from all over the country. But this is an absurd way to run a health care system. GoFundMe is a terrible substitute for smart, congressional action. Like so many others, Rachel and I have had to fight with our insurer, which has issued outrageous denials instead of covering the benefits we paid for. We have so little time left together, and yet our system forces us to waste it dealing with bills and bureaucracy. That is why I am here today, urging you to build a more rational, fair, efficient, and effective system. I am here today to urge you to enact Medicare for all.'
#AdyBarkan #Healthcare #Congress #MedicareforAll
Connect with NowThis
» Like us on Facebook:
» Tweet us on Twitter:
» Follow us on Instagram:
» Find us on Snapchat Discover:
NowThis is your premier news outlet providing you with all the videos you need to stay up to date on all the latest in trending news. From entertainment to politics, to viral videos and breaking news stories, we’re delivering all you need to know straight to your social feeds. We live where you live.