In this video, I explain some of the changes that Medicare and Medicaid are planning on making regarding who qualifies to receive the Spinraza treatments. Eleven states, including the state that I live in, Texas, are having possible stipulations and requirements imposed by the Medicaid and Medicare system detailing who qualifies to receive the Spinraza injections. When Biogen and Ionis created Spinraza, there were no stipulations as to who could and could not receive this potentially life-changing treatment. Since there were no stipulations and requirements when they developed Spinraza, there should be no conditions or requirements imposed by the Medicare and Medicaid system. As a collective voice, we have every right to demand that there be no stipulations or restrictions put on anybody who has SMA, and their rights to receive this treatment, including individuals that have Medicaid and Medicare as their insurance carrier. Please take time out of your day and help those of us that are on Medicaid and Medicare. By following the instructions that I give you in my video, and by sending one email, we can make sure that our voices are heard regarding this important issue.
Please subscribe to my YouTube channel, follow me on twitter, send me an email or leave me a message at the end of the video that you are watching and I will be more than happy to answer any questions that you may have.
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Thank you for this information Michael. I began my Spinraza treatment on 1/30/18 with Medicare and Medicaid funding it so I’m very worried about any changes Medicare could make to their Spinraza policy. Even though my state of California wasn’t listed on the Cure SMA email I still felt it was necessary for me to email Medicare. Keep up the very informative videos.
I wouldn’t worry to much Shawn. If they’ve already started funding your treatments, I highly doubt they’ll stop. Keep me informed. Please subscribe to my Youtube channel and click the bell notification icon so you’ll know when I do a new video. Also, you can still send an email regarding your thought to the address I show on my website. We really need everyone to voice their opinions, even if you don’t live in one of the states mentioned in my video. God bless and keep in touch.